Life After Stroke: Priorities, Challenges and Ways Forward

The session highlights key issues affecting stroke survivors in the longer term and shares examples of good practice and what ‘good’ long term support looks like in a post-pandemic context.

Bo Norving

Bo Norving – is Professor in Neurology at Lund University, Sweden. He has published over 500 papers on stroke and several books. He was corresponding author of the Swedish Aspirin Low-Dose Trial (SALT) published in The Lancet 1991 as the first trial to demonstrate the benefit of low dose aspirin therapy for the prevention of stroke.

Bo is a founder of the Swedish Stroke Register (Riksstroke), the world’s first national stroke registry. Since 2014 he chairs the Riksstroke, and is actively engaged in many international register collaborations. He is the first Editor-in-Chief for the European Stroke Journal.

His presentation on challenges in supporting Life after stroke: experiences from Sweden can be viewed at 12:52 in the video.

Supporting Slides

Bo Norving Q&A:

How is the Swedish Stroke Register financed and how far are the services for stroke survivors covered by insurance

Do you think that the post-stroke checklist can be used as performance indicators for European healthcare systems in addition to the key performance indicators already defined in the Stroke Action Plan?

Did you find differences in after-stroke care for persons with hemorrhagic strokes as compared to ischemic strokes?

Any reason for three-month follow up reviews as opposed to six-month as we do in the UK? Many stroke patients may still be receiving therapy six to eight weeks post hospital discharge.

Juliet Bouverie

Juliet Bouverie – is the Chief Executive of the Stroke Association, the UK’s leading stroke charity promoting life after stroke. The organisation’s activities extend from funding stroke research, to providing services to stroke survivors and their families, influencing and campaigning for change, and educating and working to prevent strokes. There are 1.2 million stroke survivors in the UK, yet stroke still remains the fourth single largest cause of death in the UK and second in the world.

Juliet co-chairs the Stroke Delivery Programme Board with NHS England and is a member of the NHS Assembly.

Her talk on how COVID-19 has impacted people affected by stroke in the UK and what that means for stroke policy and support services can be viewed at 31:19 in the video.

Supporting Slides

Juliet Bouverie Q&A:

The overriding sense of abandonment after stroke was predominant before the pandemic. It must be overwhelming now and we have a huge amount of work to do to rectify it

Perhaps it is not the digital medium that is the issue - more about how it is utilised by a skilled therapist?

Is there data on people from other ethnic communities and what their experiences are? What are the barriers and challenges to access the services? How do we address these issues?

Will stroke care in the future include telehealth as hybrid services? Do you think we have enough skilled workforce across Europe to do this?

Liam Healy

Liam Healy – is a Consultant Stroke Physician and Geriatrician and Clinical Lead for Stroke in Cork University Hospital, Ireland. Cork University Hospital is the busiest inpatient stroke service in the country and one of two thrombectomy centres nationally.

Liam trained in Ireland as a Geriatrician and spent a number of years training in Edinburgh in Acute Medicine and Stroke before returning to Cork in 2015. He is a member of the Irish Clinical Advisory Group on Stroke and a Clinical Lecturer in University College Cork.

His talk on life after stroke: experiences in providing care in Ireland during COVID-19 can be viewed at 1:13:00 in the video.

Supporting Slides

Caterina Pistarini

General Q&A:

If we prioritise mood disorder, might this have a subsequent positive impact on all the other outcomes/issues?

Do we understand why stroke is so neglected? If we did - it might help change the situation

Do the speakers agree that reviews of stroke survivors should be done every year, as survivors' issues can change over the years, and new preventions and interventions may be required?

Is there any issue on in the diffusion of technological support for telemedicine in your country? In Italy there is a problem of access to these technologies especially in the elderly.