2024 Programme

Please see below for a detailed overview of each session and speaker. For a programme overview with timings, please download here.

Plenary 1: Building the evidence for support for life after stroke

Monday 11th March 09.30-10.45

Overview

Building on the “A Life Saved is a Life Worth Living” report, this session presents current evidence and research about supporting people and their families to live well after a stroke. The session will also highlight key gaps in the evidence base and identify priorities for more funding, more lobbying and more evidence.

What kind of evidence is really important? A personal perspective

Grethe Lunde

Stroke Survivor, Norway

Mapping the evidence base for life after stroke: A research perspective

Amanda Farrin

Professor of Clinical Trials and Evaluation of Complex Interventions, University of Leeds

How can we use research evidence to improve life after stroke: A clinical perspective

Associate Professor Margit Alt Murphy

University of Gothenburg, Sweden

Plenary 2: Life after stroke - support in action

Monday 11th March 14.00-15.15

Overview

This session will focus on the different perspectives of what a good life after stroke’ looks like through discussion and presentations around different experiences and good practice from different countries. 

Perspectives from Europe

Videos from people with lived experience from around Europe: ‘After you left hospital what non-medical support did you find most helpful to help you live a good life after stroke?’

Perspectives from support organisations

What types of support have made the most difference to people’s lives and what have been the most successful strategies?

Dr Michael Brinkmeier

Stiftung Deutsche Schlaganfall-Hilfe, Germany

Mercé Ayesta

Fundacio Ictus, Catalonia

Katherine Staley

Associate Director of Services at the Stroke Association

Plenary 3: A showcase of life after stroke support in Ireland

Tuesday 12th March 11.15-12.30

Overview

In this session, we will discuss how we developed a support service in Ireland to meet the unmet need of those affected by stroke, the challenges and opportunities we face, and we will share top tips on how to set this service up in your country.

The Stroke Connect Service - Filling the gap for support post discharge in Ireland

Helen Gaynor

Irish Heart Foundation, Ireland

My journey through the Stroke Connect Service and beyond

Fiona Bardon

Stroke Survivor, Ireland

Meeting the unmet need for information on stroke for children and young people (CYP) - The CHATS booklet

Wendy Moynan

Tallaght University Hospital

Dr Aine Connolly

Principal Clinical Neuropsychologist St James Hospital, Dublin

What does a good life after stroke mean for you and what support did you need to make it happen?

Kieran O'Carroll

Stroke Survivor, Ireland

David Walpole

Stroke Survivor, Ireland

Clíodhna Ni Bhroin

Stroke Survivor, Ireland

Gerard Gill

Stroke survivor

Parallel Sessions

A disproportionate burden? Life after stroke in women

Monday 11 March 11.30-12.30
Tuesday 12 March 09.30-10.30

This session will discuss the specific and unique issues that women face after stroke. It will cover the historical lack of representation of women in stroke research before moving on to specific issues for women in relation to secondary prevention of stroke and managing life after stroke. The session will highlight the need for a greater understanding of the impact of biological sex and gender on clinical practice and research on life after stroke.

Contextualising sex and gender to improve stroke research, policy and practice

Dr Else Sandset

Oslo University Hospital, Norway

Specific secondary stroke risk factors in women after stroke

Professor Anita Arsovska

Universities Cyril and Methodius, North Macedonia

Raising a family after stroke - My story

Diana Wong Ramos

Stroke Survivor, Portugal AVC Stroke Organisation, Portugal 

Spasticity: What is it and how can we manage it?

Monday 11 March 11.30-12.30 and 16.00-17.00

To understand what spasticity is and the ways it can be managed.

What is spasticity?

Dr Iwona Sarzyńska-Długosz

Institute of Psychiatry and Neurology Warsaw, Poland

Management of spasticity with botulinum toxin/physiotherapy management

Dr Stephen Ashford

Kings College London, England

A vision for vision after stroke

Monday 11 March 11.30-12.30 and 16.00-17.00

To consider the impact of visual impairment and/or sight loss after stroke. The session will include talks from stroke survivors about their experiences of sight loss after a stroke and how they’ve coped with this and talks from researchers and support organisations working to develop ways to better assess and provide care for people who experience visual impairment or sight loss after a stroke.

Vision assessment in stroke care services: the KROSS project

Professor Helle Falkenberg

University of South-Eastern Norway, Norway

What helps in coping with and self-management of sight loss after stroke

Dr Lauren Hepworth

University of Liverpool, England

Jeremy Johnston

Stroke Survivor, Northern Ireland

No decision about me without me – speaking together with one voice

Monday 11 March 11.30-12.30
Tuesday 12 March 09.30-10.30

In this session, we will address the challenges faced by those affected by stroke when treatment and support decisions are being made. We will hear from stroke survivors, aphasia trialists and those involved in advocacy. They will outline potential strategies and skills to foster successful communication to ensure that those affected by stroke are central their treatment and support decision making process. 

Advocacy in action and effective communication: Role play session between an allied health professional and stroke survivor – a good conversation and a bad conversation

Advocacy in action and effective communication: Reflection with the audience - How we advocate for stroke including practical examples of navigation health issues and lived experiences

Marianne Tangen

Stroke Survivor, Norway

Stacie Broek

Stroke Survivor, Switzerland

Chris Macey

Irish Hearth Foundation, Ireland

Dr Marina Charalambous

Cyprus University of Technology, Cyprus

Professor Hariklia Proios

University of Macedonia, Greece

SUpporting wellbeing through PEeR Befriending: Outcomes of the SUPERB trial for people with aphasia

Professor Katerina Hilari

City University of London, England

Highest scoring abstracts from research and service provision

Monday 11 March 16.00-17.00

The highest scoring scientific and service evaluation abstracts will be presented in this session.

Service: Socialising from home - Peer support and communication practice at the Aphasia Café

Dr Helen Kelly

University of Cork, Ireland

Service: Enhancing the competency of coordinators in a stroke support organisation; creating a self-assessment framework.

Suzanne Smith-Bayley

March of Dimes, Canada

Research: Addressing sexuality post-stroke: Can a targeted implementation change practice?

Associate Professor Margaret McGrath

University of Sydney/University College Cork, Ireland

Research: Life one year after stroke – results from the Swedish Riksstroke quality-of-care review

Professor Mia von Euler

Orebro University, Sweden

Exploring mental health post-stroke

Monday 11 March 15.00-16.00
Tuesday 12 March 09.30-10.30

Following from the Life saved life worth living report launch in 2023, this session will focus on issues around mental health. The session will explore how these difficulties can affect stroke survivors and carers and will review what research tells us about post-stroke mental health difficulties. Practical tips on how to recognise and deal with mental health difficulties will be provided. The session will end with a discussion about what can be done better in post-stroke mental health.

What do mental health difficulties look like in post-stroke?

Professor Niall Broomfield

University of East Anglia, England

What should you do when you are struggling?

Professor Maggie Lawrence

Glasgow Caledonian University, Scotland

My mental health and me

Stacie Broek

Stroke Survivor, Switzerland

Secondary stroke prevention - managing blood pressure and the benefits of exercise

Tuesday 12 March 09.30-10.30

This session will focus on two important aspects in the prevention of further strokes – managing blood pressure and exercise. We will discuss the importance of controlling high blood pressure, how best it should be measured and managed both with and without medicines. We will also discuss the importance of exercise in healthy ageing and what exercise, in what quantity, makes a difference. There will be practical tips for stroke survivors, carers and professionals.

Stroke secondary prevention: Managing blood pressure

Dr Eamon Dolan

Connolly Hospital, Ireland 

Stroke secondary prevention: The benefits of exercise

Dr Noel McCaffrey

CEO, ExWell Medical

Poster exhibition

Overview

In addition to the planned talks we are also holding a poster exhibition showcasing submitted abstracts across two categories: Science and Services. 14 posters to be showcased in the services category (six highly commended), and 54 have been invited to display posters in the science category (18 highly commended).